Hospice

Manager of volunteer services

Responsible for recruitment, orienting, and training hospice volunteers.

Artificial nutrition and hydration

Supplying fluid (water) and nutrition either intravenously or through a tube to a sick person who cannot receive nutrition and hydration in any other way.

Hospice provides

Support and care for persons in the last phases of an incurable disease so that they may live as fully and as comfortable as possible.

Hospice affirms

The cocept of palliative care as an intensive program that enhances comfort and promotes the quality of life for individuals and their families

Supervision of the volunteer

Accompanying the volunteer on initial visit. Review of the volunteer notes. Connecting with the patient, family and caregiver. Routine communication with the volunteer. Annual supervisory visit as part of the annual competency and performance evaluation.

human immunodeficiency virus (HIV)

Acquired immunodeficiency syndrome (AIDS) is caused by HIV, which damages the cells in the body's immune system so that the body is unable to fight infection or certain cancers.

Hospice Physician

Alleviates pain and suffering at the end of life. Coordinates team of social workers, nurses, and volunteers.

liver failure

Condition in which all normal functions of the liver are severely deficient

conflict of interest

a conflict between self-interest and professional obligation

social worker

a mental health professional who counsels patients and provides a link between the patient and the treatment center

Alzheimer's disease

a progressive and irreversible brain disorder characterized by gradual deterioration of memory, reasoning, language, and, finally, physical functioning

Nurses

coordinates each patients care with the other members of the care team.

Chronic branchitis

Excessive secretions airflow is poor and covering of lungs become thick.

I really don't want to die this year

I cannot imagine how you feel, are there things you want to do before you die?

So the things which are most important to you are

I have been listening, did I hear you correctly

What about that day was significant?

I want to understand

Yes, go on

I'm listening

OSHA standard

Identify cause of job injury

Step 2:the volunteer plan of care

Identify problems Identify goals Interventions

Continued eye contact

'I am interested and you are important

50% in 85

100%

Moderate Alzheimer's

3-5 years after symptom onset Agitation Agnosia, apraxia, aphasia Significant memory deficits Paranoia (e.g. loses keys, thinks someone stole them) Need for assistance with Activities of Daily Living (e.g. leaves water boiling on stove & forgets)

4% in 65

75% dementia

24% in 75

85% dementia

Remember to not call

911 but instead contact the hospice program

Parkinson's disease

A disorder of the central nervous system that affects movement, often including tremors.

Tuberculosis

An infectious disease that may affect almost all tissues of the body, especially the lungs

Do Not Intubate (DNI) order

An order written by a physician at the family's request not to intubate a child who stops breathing.

Hospice affirms life

And neither hastens nor postpones death

Hospice volunteers report directly to

And receive supervision from, the manager of volunteer services, a volunteer may also receive additional supervision and direction from other employees of the local hospice program.

Spiritual care coordinator

Assisting the patient and family with spiritual issues at the end.

Administrative support activities

Assisting with compiling and sending our monthly bereavement letters. Entering data specific to our volunteer and bereavement programming. Scanning documents into kindred link. Assisting with the organization and development of the annual memorial service or children's bereavement camps. Answering the office telephone.

Chronic bronchiectasis

Bronchial is dilated and destroyed over a period of time.

Guidelines

Call ahead Dress code Name tag Match mood Listen Avoid jumping to conclusions Aware of environments Respond in common language Summarize what you hear 'what I heard you say is' 'to recap' Use patient name Watch for signs of fatigue Read body language Remember that patient and family has own needs Communicate concerns to manager Do not get involved with money, or bad stuff Report immediately if any signs of concern Complete the volunteer note

Emergency

Call your local hospice office Remain calm and comforting Remain with the patient until hospice staff member arrives

Hospice aide

Certified nurse assistance. Follows the plan of care that the interdisciplinary team develops and assists the patient with bathing and personal care, also assist the patient or the caregiver with light homemaker services.

COPD

Chronic Obstructive Pulmonary Disease, lung Dz commonly seen in smokers

OSHA

Creates and enforced standards or regulations to improve on the job health and safety

If the death run it's normal course

Death may be expected in six months or less

Step 3: the volunteer assignment

Demographic information Assigned interventions Needs of the patient Visit frequency

Hospice philosophy and service

Depend upon both professional and volunteer services to fulfill organizational, patient, caregiver, and family member needs.

Orientation and training requirements

Duties and responsibilities. The person to whom the volunteer reports. Guidance related to specific individual responsibilities and assignments. Hospice goals services and philosophy. Confidentiality and protection of the patients and family rights. Family dynamics, coping mechanisms, emergency procedures including how to respond when a patient dies during the volunteer visits

Hospice offers palliative care

For all individuals and their families without regard to age, gender, nationality, race, creed, sexual orientation, disability, diagnosis, availability of a primary caregiver, or ability to pay.

tasks of dying

Getting affairs in order. Making medical care decisions Planning for immediate future Coping emotions Letting go

Volunteer don't

Give advice You should Focus on self enhancement Intrude Probe Appear busy Follow your own agenda Stay too long Monopolize the conversation Gossip Change the subject Ignore problems of patient Give your own advice

Open ended

How are you today? I want to know and I am concerned about you

Silence

I am committed to listening and will be patient

Put away cellphone

I am here for you

The holidays can be a difficult time when someone is sick. What are your family traditions for thanksgiving

I can imagine this year feels very different than other holidays. What are some ways you could enjoy the day with your family even if it is not the same as year's past?

Additionally performance and competency

Is assessed on an ongoing basis through assessments made during supervision of interaction related to assignments and the annual performance evaluation

Hospice staff

Is on-call 24 hours a day, seven days a week

Paraphrase

It sounds like you had to make some difficult decisions and to chose to put your family first. I want you to know that you are being heard and i want to hear you correctly

Notice of patient rights and responsibilities

Located in patient family handbook

OSHA

Occupational Safety and Health Administration

Advising hospice of any problems

Or dissatisfaction with the services provided

List of identifiers

Patient name Diagnosis Social security Birth date Telephone Email address Insurance Medical record License Photograph

Bereavement coordinator

Professional with grief experience. Assesses and supports the bereaved survivor, facilitates support groups and assigns bereavement volunteers to visit the caregiver, they follows the plan of care for the bereaved caregiver for at least a year following the death. the goals of bereavement counseling for loved ones during the patient's illness and following the death are to (1) provide support and (2) assist survivors in the transition to a life without the deceased person.

acute liver failure

Rare clinical syndrome resulting in severe impairment or necrosis of liver cells without preexisting liver disease or cirrhosis Acetaminophen overdose is leading cause in the United States

Where does hospice care take place?

The majority of hospice patients are cared for in their own homes or the homes of a loved one. 'Home' may be broadly defined to include services provided in nursing homes assisted living facilities and prisons. Hospice care is given wherever it is needed.

acquired immunodeficiency syndrome (AIDS)

The most advanced, and fatal, stage of an HIV infection.

Hepatitis C (HCV)

The most widespread chronic blood-bourne illness in the US. No Vaccine available

The team consist of

The person receiving care, The patient family, the patient personal physician, nurses, hospice aides, social workers, counselors, mangers of volunteer services, trained volunteers, other professionals

Diversionary Activities

Those pursuits or actions which divert the mind from care, business or study, thus causing relaxation and/or amusement.

Step 1: volunteer request

Type of request Needs of the patient Frequency of services

Call if

Uncontrolled pain Injured Condition changes Mental status changes Had concern or questions In need of assistance of care Stopped breathing Actively dying

Volunteer note

Visit date Patient name Medical record number Time in/time out Length of visit

Complete a

Volunteer note after the patient visit and submitted to the manager of volunteer services no later than 24-48 hours.

cardiopulmonary resuscitation

an emergency procedure for life support consisting of artificial respiration and manual external cardiac compression

Advanced directives

are legal documents that allow you to spell out your decisions about end-of-life care ahead of time. They give you a way to tell your wishes to family, friends, and health care professionals and to avoid confusion later on.

HIV transmission

blood, semen, vaginal fluid, breast milk

pulmonary embolism

clot or other material lodges in vessels of the lung

amyotrophic lateral sclerosis

degenerative disorder of motor neurons in the spinal cord and brainstem

Symptoms of Hepatitis B

flu like symptoms, loss of appetite, fatigue, nausea,vomiting, fever, dark urine, and enlargement of liver.

vascular dementia

form of dementia caused by a stroke or other restriction of the flow of blood to the brain

congestive heart failure

heart is unable to pump its required amount of blood

Mild Alzheimer's

memory loss, absenemnindenss, anxiety, irritability, difficulty concenrating

renal disease

most common cause of secondary hypertension (kidney disease)

hand hygiene

performing hand washing, antiseptic hand wash, alcohol-based hand rub

Severe Alzheimer's

results in a loss of ability to communicate, remember, and care for self over 1-5 years in elderly patients, eventually fatal

Hepatitis B virus

virus that causes inflammation of the liver; transmitted through any body fluid, including vaginal secretions, semen, and blood

asthmatic bronchitis

when asthma is complicated with bronchitis